Kathryn Ely

Family Support Advocate

Kathryn and her husband, Matt, and three children live in metro Atlanta, GA. Their son, Stetson, was diagnosed with AS when he was 17 months old. After his diagnosis, the Ely’s became heavily involved with ASF. They host a golf tournament, Stetson’s Chip Away @ AS, each year in honor of Stetson and coordinated the ASF Walk in Atlanta for four years. As a family they are committed to raising awareness of Angelman syndrome and funds for research. The Ely’s have utilized the ASF AS clinics and ASF resources around the country from the clinics at Mass General, Vanderbilt, and UNC, along with visiting other specialists.

In July 2019, they welcomed Stetson’s brother, John Allen into the world and baby sister, Amelia in January 2021.