ASF Family Conference
July 23 - 26, 2004
Sign Up for Consultations with Angelman Syndrome Experts
Sign up for consultations with Angelman syndrome experts to receive personalized guidance tailored for our attendees. Limited spaces are available for one-on-one or small group sessions with specialists in mental health, behavior, toileting, IEPs, AACs, insurance and government resources, adult transition, financial planning, and more. Don’t miss this opportunity to connect with experts dedicated to supporting the unique needs of the Angelman syndrome community.
More sign ups coming soon! Keep checking back.
Counseling Sessions
Book a counseling session with the Angelman Syndrome Foundation’s counseling consultant, Shannon Barlow, during your time at the ASF Family Conference. Shannon is a Licensed Clinical Professional Counselor with 20+ years of experience working with individuals, families, and children/ adolescents. Shannon has spent the last four years supporting the AS community. Limited spaces available.
TOILETING FOR BEGINNERS
Join a small group session with Dr. Colin Muething to discuss the journey of toileting your loved one who lives with Angelman Syndrome. Dr. Colin Muething, Ph.D., BCBA-D, from Emory University School of Medicine serves as Program Director of the Complex Behavior Support Program, one of a handful of programs of its kind. Limited spaces available.
TOILETING FOR THOSE ACTIVELY TRAINING
Join a small group session with Dr. Colin Muething to discuss the journey of toileting your loved one who lives with Angelman Syndrome. Dr. Colin Muething, Ph.D., BCBA-D, from Emory University School of Medicine serves as Program Director of the Complex Behavior Support Program, one of a handful of programs of its kind. Limited spaces available.
BEHAVIOR ONE-ON-ONE CONSULT
Dr. Chris Keary works with families to develop treatment plans addressing behavioral and mental health concerns in patients with Angelman Syndrome at the MGH Angelman Syndrome Clinic in Boston. Schedule a consult with Dr. Keary on Wednesday, July 24 or Thursday, July 25 at the Kalahari Resort in Sandusky. Limited spaces available.
Separation Anxiety Small Group
Join a small group with Dr. Chris Keary and a group of your peers to discuss struggles with separation anxiety. Dr. Keary will guide the discussion and help navigate solutions and management techniques. Limited spaces available.
Insurance, Waivers, and Resource Consult
Eric Wright, LCSW supports community members in navigating private insurance, government programs, and the supports set up nationally and locally for individuals with Angelman syndrome. Consult with Eric on advocating for better coverage and what to do when facing rejection.
IEP Consult
No appointment necessary, simply drop by.
Diet Small Group: Managing Hyperphagia and Weight
Come for a small group session to discuss hyperphagia and weight management for your loved one who lives with Angelman Syndrome. Heidi Pfeifer is a registered dietitian with 25+ years of experience and has published dietary management in Angelman syndrome. Limited spaces available.
Diet Therapy Small Group (LGIT & KETO)
Would you like to dive deeper into using diet as a way to manage epilepsy? Are you already using a LGIT/Ketogenic Diet and wondering if you are doing it right?
Come for a small group session to discuss using diet therapy for your loved one who lives with Angelman Syndrome and epilepsy. Limited spaces available.
Heidi Pfeifer is a registered dietitian with 25+ years of experience working with the ketogenic diet. During that time she changed the way that dietary therapy has been implemented by developing the Low Glycemic Index Treatment as an alternative to the classic ketogenic diet.
AAC Working Group: Add Variety to Every Interaction
Join Tabi and Rachael, co-creators of Stepping Into AAC, for a hands-on workshop focusing on the various purposes or reasons why an individual communicates. This small group, filled with your peers, will give you tangible and actionable AAC practices as well as “mini-goals” to take home. Review communicative functions such as: Requesting, Rejecting, Greetings, Expressing Feelings, and more. Limited to 20 participants.
AAC Working Group: Finding balance in communication
Join Tabi and Rachael, co-creators of Stepping Into AAC, for a hands-on workshop on balancing variety and repetition for optimal engagement and learning. This small group, filled with your peers, will give you tangible and actionable AAC practices as well as “mini-goals” to take home. Discover why repetition and variety are both important and require balance. Limited to 20 participants.